Facts & Figures

  • Congenital heart defects are the #1 birth defect worldwide

  • About 1 out of every 100 babies born each year in the United States have some type of Congenital Heart Defect (approximately 40,000/year)

  • 85-90 percent of CHDs have no known causes

  • Approximately 1.3 million people living in the US today were born with a congenital heart defect, and at least half of these individuals are under age 25.

  • Nearly twice as many children die from Congenital Heart Defects in the United States each year than from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for Congenital Heart Defects

  • Each year worldwide 100,000 babies (under one year old) will not live to celebrate their first birthday

  • Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood

  • It is a proven fact that the earlier CHD is detected and treated, the more likely the affected child will survive and have less long term health complications

About Plastic Bronchitis

Plastic bronchitis is a lymphatic flow disorder in which lymph fluid builds up in the airways forming rubbery caulk-like casts of the bronchial tree, causing severe respiratory issues. Most prevalent in patients with certain forms of congenital heart disease who have had the Fontan surgery and those with lymphatic abnormalities. It can also be associated with certain lung diseases, infections, and (very rarely) allergies. Although its prevalence

Symptoms

This condition is characterized by the expectoration of bronchial casts accompanied by uncomfortable coughing fits and a feeling of hypoxia or oxygen deprivation.